Analysis of the program's benefits “Caring for Caregivers” for participating family caregivers

Abstract

Introduction: With the growth of the elderly population dependent on care, it becomes necessary for more people to take on the role of caregiver and for services to prepare to provide appropriate care to older individuals and their caregivers. In this context, the second edition of the program “Cuidando de quem cuida” (“Caring for Caregivers”) was completed in 2023, aiming to support and guide caregivers of dependent elderly individuals. Objectives: To characterize participating family caregivers in terms of sociodemographic and health conditions and the time dedicated to caregiving; to compare their burden before and after the program; and to identify other possible benefits resulting from participation in the program. Method: A mixed-method, retrospective, crosssectional, descriptive, and analytical study, based on data analysis from 22 participating family caregivers. Statistical tests allowed comparisons of caregiver burden before and after the program, as well as the identification of associations between caregiver characteristics and burden. Participants’ opinions were submitted to thematic categorical analysis. Results: Half of the caregivers were between 41 and 59 years old; most had completed higher education, had an income above four minimum wages, and reported one or more clinical complaints. A statistically significant reduction in burden was identified. None of the caregivers' characteristics were associated with this outcome, leading to the inference that the only variable associated was participation in the program. In line with this, caregivers highlighted positive aspects of the program. Conclusion: Benefits from the program were evident, such as support, network building, and the expansion of resources for self-care. It is recommended to conduct a study with the inclusion of new participants, enhancement of data collection instruments, and inclusion of data from the dependent elderly individuals, as ways to guide future interventions.